Because you guys are so amazing, I’d like to share something going on in my life. My nephew and his family are going through a tough time, and man, is THAT an understatement.
Macsen the Grayt – The blog of their journey
My sister-in-law, Alex, is currently pregnant with their third child, and first boy, Macsen. Fairly recently, we discovered that Macsen has been diagnosed with a rare form of CHD called Hypoplastic Left Heart Syndrome (HLHS), a disorder that I had previously never even heard of, let alone knew anything about.
This disorder means that Alex and her husband Aaron will have to come up with a crazy high amount of money to cover everything, including living expenses, car payments, etc. during and even after traveling to the city where they have the pediatric surgeons/facilities skilled in treating HLHS that they so desperately need.
From my sister-in-law Gabi, Alex’s sister: “All donated funds are going directly to the family to offset costs associated with Macsen’s Heart Journey. My sister has had to put her Photography Business on hold, due to the amount of time it takes to research, coordinate and select the best medical care in time for his birth. Your donations will help pay down some of the expected medical bills (after insurance), keep up with current financial commitments, and allow the family some time to recover properly without the financial burden hanging over their heads.
While the anticipated cost of his three surgeries is around $3 million, I set the goal for this campaign as his due date, 15-9-12, so, at $15,912.
If the worst scenario occurs, and he does not make it – (gulp) – every remaining penny donated here will go directly to support HLHS and CHD research. Every. Penny.”